As the second plenary at this year’s North American Cystic Fibrosis Conference showed, people with CF — including me — are experiencing life milestones that once felt impossible.
I’m glad that my story was shared during the first plenary at the North American Cystic Fibrosis Conference that focused on the effects of modulators on people with CF.
I joined my local EMS squad to give back to my community, and that experience led me to pursue a career in medical assisting. Through anxiety, the pandemic, and personal challenges, I’ve stayed ...
Getting a diagnosis of any chronic disease later in life is a shock. It can also be a relief to have an explanation for the symptoms you've been experiencing for years. Whatever reaction you have, ...
As Congress continues addressing health care access and affordability, the undersigned patient advocacy organizations urge passage of Pharmacy Benefit Manager (PBM) reform. Together we represent ...
When my daughter was first diagnosed with cystic fibrosis, the misinformation I found online only deepened my fears. But thanks to the guidance and compassion of our care team, I’ve realized life with ...
Food insecurity is a long-standing problem in America. According to the U.S. Department of Agriculture (USDA), food-insecure households are those with “limited or uncertain access to adequate food.” ...
The Cystic Fibrosis Foundation recently announced that there are almost 40,000 people living with CF in the United States. Not only are there more of us with CF, but we are now living longer. Based on ...
Growing up with cystic fibrosis made me stubborn and determined to accomplish everything that I was told I could not do. At my elementary school track and field day, I would make sure to always choose ...
Nosis Bio, an inaugural winner of the Foundation’s Golden Ticket Competition, receives funding to further explore design of novel ligands, which are specialized molecules that could help more precise ...
The drug company Corbus Pharmaceuticals will start its next Phase 2 clinical trial to test a potential inflammation-targeting drug in people with cystic fibrosis in the first quarter of 2018. The ...
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