As the second plenary at this year’s North American Cystic Fibrosis Conference showed, people with CF — including me — are experiencing life milestones that once felt impossible.
I’m glad that my story was shared during the first plenary at the North American Cystic Fibrosis Conference that focused on the effects of modulators on people with CF.
Getting a diagnosis of any chronic disease later in life is a shock. It can also be a relief to have an explanation for the symptoms you've been experiencing for years. Whatever reaction you have, ...
As Congress continues addressing health care access and affordability, the undersigned patient advocacy organizations urge passage of Pharmacy Benefit Manager (PBM) reform. Together we represent ...
In December 2019, I started taking Trikafta. I had always taken advantage of new cystic fibrosis medicines and therapies that became available but always hoped for something a little more than ...