I always assumed my chronic fatigue would go away after starting Trikafta and getting through the newborn stage with my twins. But, when it didn’t, I realized I needed to rethink my approach to ...

Our cells contain DNA, a molecule that stores all the genetic information needed to make proteins. A gene is a specific sequence of DNA that carries the instructions for making a protein. In ...

Parenting a child with cystic fibrosis is very new to me and my partner, Ryan. Our daughter, Audrina, is 6 months old and was diagnosed with CF shortly after birth. Audrina’s experience with CF has ...

I was born in 1983, beginning my lifelong journey with cystic fibrosis. My early days were fraught with challenges. I had a swollen abdomen at birth, struggled with failure to thrive, and suffered ...

Before my son was diagnosed with cystic fibrosis, my life lacked a profound sense of purpose. I did the typical routine a wife and a mom of three does. When I did have time for myself, I’d upload ...

I am a part of the approximately 10% of people with cystic fibrosis who are unable to benefit from or tolerate modulators such as Trikafta ® and, every day, I position myself to advocate for research ...

I was diagnosed with cystic fibrosis when I was about to turn 3 years old, so I do not know my life without this disease. As much as I fought it for years, cystic fibrosis is part of my identity and ...

Help make CF stand for Cure Found. Give Once Give to a Walker Other Ways to Give ...

The Delaware Valley Chapter - Philadelphia Office of the Cystic Fibrosis Foundation welcomes you! Volunteers are the key to our success and the lifeblood of our organization. We have many ...

The Gateway Chapter of the Cystic Fibrosis Foundation welcomes you! Volunteers are the key to our success and the lifeblood of our organization. We have many opportunities for you to get involved.

When I fell into a health insurance nightmare after my lung transplant, my husband and I decided to move to his home country — England. Now, 10 years later, I feel like I float somewhere between the ...